Patient Partner Research
How can patients help improve research?
Over the last decade, patients, living kidney donors and caregivers have become much more involved in their care as well as research focused on improving kidney care and outcomes.
Patient-centered approaches have already contributed to significant advances in kidney care through initiatives such as https://cansolveckd.ca/ which is a national network of patients and researchers.
Patients are true experts with respect to their own experiences of illness. This expertise is powerful and can create research with much more meaningful impact. The patient-as-partner approach works to involve the patient a true member of the health care team and a full partner in his or her care.
Patient partners involvement can include the identification of the research topic, development and execution of the research plan, authorship on publications, white papers and manuscripts, and helping to translate research learnings to other patients, healthcare organizations, and government agencies.
The Kidney Alliance works to connect patients and researchers with mutual interests to enrich and enhance research outcomes and impact.
Research Exchange: Patient identified research questions
Issues that affect the kidney transplant community change over time, and its important that we can bring together patients to both share and provide input on topics of key concern. Wherever possible, working groups can be established to engage patients in defining and identifying potential solutions to emerging challenges. Throughout the year we will survey […]
Research Exchange: Projects seeking patient partners
We are pleased to showcase research projects currently seeking active patient partners that align with our goals of improving kidney patient care and including patients as meaningful partners. If your research projects aligns with our goals, we would be pleased to support, partner or highlight your research on our site. Please email us with information […]
Best practice kidney transplant research – GET THE FACTS!
There has been a lot of published research that outlines best practices recommended for kidney and transplant care, yet it is up to each individual hospital to decide whether they will adopt any of these strategies. Patients and living donors can play a role in helping to advocate hospitals work to implement these best practices. […]
What is the Kidney Patient Partner Coalition?
The creation of a Patient Partner Coalition (PPC) is a key outcome of a Patient Partner Workshop held July 2022 with kidney transplant recipients and living kidney donors who met to brainstorm roles they can play in translating best practice kidney transplant research findings as well as other research initiatives. We believe patients and living […]
Recent patient partner research
Full list coming soon!
Research Partners
We are always looking for new partners to help us achieve our goals. To date we are proud to have partnerships with a number of organizations including: The Transplant Ambassador Program (TAP) http://www.TransplantAmbassadors.ca; The PKD Foundation https://pkdcure.org; Can-SOLVE CKD Kidney Research Network https://cansolveckd.ca/; IC/ES Kidney Dialysis and Transplantatio Research Program https://www.ices.on.ca/Research/Research-programs/Kidney-Dialysis-and-Transplantation