The creation of a Patient Partner Coalition (PPC) is a key outcome of a Patient Partner Workshop held July 2022 with kidney transplant recipients and living kidney donors who met to brainstorm roles they can play in translating best practice kidney transplant research findings as well as other research initiatives.

We believe patients and living donors have a unique opportunity, credibility, and authenticity through their individual and collective lived experiences to help disseminate research about best practices in kidney health in a way that researchers and other stakeholders may not be able to do – because of professional conflicts, time restraints or other factors. Patients can persuasively request for and be part of building a more transparent and accountable healthcare system by:

• Understanding what kidney and transplant best practices have been published and established;
• Identifying which best practices are being followed by which renal programs/transplant hospitals;
• Presenting on and informing a broad audience about these best practices and why it is important they be adopted as standard practice;
• Asking administrators to be accountable for the effectiveness of their programs and health delivery processes

We will post our activities on this page as we go forward. If you would like to help us in our work to share the benefits of this best practice research contact us at info@kidneyalliance.ca

See more about Best Practice Transplant Research here and ask your transplant team if they follow these processes.

Best Practice Kidney Transplant Research – Know the facts!