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empowering patients
Helping patients contribute to the evolution of kidney care
ABOUT THE KIDNEY PATIENT AND DONOR ALLIANCE OF CANADA
Be Inspired, Get Informed, Take Action
Knowledge is power, and when you live with or love someone with chronic kidney disease (CKD), information is the most important tool.
The Kidney Alliance is a motivated and passionate group of kidney patients, their families and living kidney donors, that strives to ensure we are at the centre of our own care and that our voices are heard clearly about the issues that matter to us most. We know that to make a real difference for ourselves and others, we need easy access to current information and research and the ability to mobilize quickly when needed to advance treatments and health policy.
We work with healthcare professionals, health organizations, clinicians, industry, health charities, researchers, and various levels of government to achieve our mission.
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What We Do
What is the Kidney Patient and Donor Alliance of Canada?
We are a not-for-profit organization made up of kidney patients, kidney donors and our families and friends that work to ensure patients and kidney donors at the centre of our own care. Any one of us alone has little chance of making a difference, but together, we can make suer our voices are heard about the issues that matter most to us. We partner with healthcare professionals, clinicians, researchers, like-minded organizations, industry, and various levels of government to improve care for kidney patients.
We advocate as a unified kidney community to improve kidney care.
Issues that affect our kidney and transplant community change from year to year, and it's critical to share ideas and input on issues of top concern. We regularly survey our community and establish patient working groups to identify potential solutions to emerging challenges.
We provide education and outreach services not otherwise available.
We know that to make a real difference for ourselves and others, we need easy access to current information and research and the ability to mobilize quickly when needed to advance treatments and health policy. Our kidney patient, living donor and healthcare community has a wealth of knowledge and experience to share. We help each other by identifying and working to fill gaps we see in patient education and by developing new educational products and expanding outreach programs like The Transplant Ambassador Program (TAP).
Patient partner research is a cornerstone of our mission.
No one can deny that patients are experts with respect to our own kidney experiences. By contribing our lived experiences and personal skills, we can ensure kidney research has an even more meaningful impact. Over the years, research roles for patients have varied from participation as research subjects and tokenism to empowering patients as full research partners who identify important research topics, participate and execute on research plans, author research papers and help translate research findings to other patients, healthcare organizations and government agencies. Patient partner research approaches have already contributed to significant advances in kidney care through initiatives such as https://cansolveckd.ca/ a national network of patients and researchers who worked together to advance kidney research across Canada.
Join us!
We are committed to mobilizing a large Canada-wide network of kidney patients, living kidney donors and our family members so that collectively, we can play an active part in improving kidney care and access to kidney care for all Canadians. Join us!
Speakers Bureau
Our Speakers Bureau features talented and inspiring patients, living donors and family members who are readily available to share their lived experiences and perspectives on important and emerging kidney and transplant issues.
Transplant Ambassador Program (TAP)
The Transplant Ambassador Program is a patient-led transplant education and support program through which Kidney Transplant Recipients and Living Kidney Donors provide support to other patients and potential donors by sharing their transplant experiences.
Research Exchange
If you're a patient or donor interested in getting involved in high impact kidney research, or have an idea related to kidney care that you think needs to be researched, visit our research exchange to learn more. Or, if you're a researcher looking for patients to enhance your research study, you've come to the right place.
Understanding CKD
It's not easy to understand kidney disease, kidney failure, dialysis or transplant, let alone medications and treatments. Visit our education hub to learn more.
Kidney Alliance in the News
Be inspired by how kidney patients and donors are raising awareness and making a difference.
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